For FOP families, the best place to begin is What is FOP? A guidebook for Families first published in 1995 in conjunction with the Second International Symposium on FOP. This second edition is a comprehensive look at FOP, answering many questions commonly asked of families and medical professionals. The Guidebook contains scientific articles by Dr. Fred Kaplan and others regarding research and treatment options. There are also articles by parents of afflicted children and adults with FOP offering insights into the condition. What is FOP? Questions and Answers for the Children is a separate guidebook written for an audience of children ages 8-12, explaining FOP in easy-to-follow language.

If you have a specific topic that you want to explore via the Resource Center, such as case studies, radiology, research, or if you are interested in obtaining many items, we can put together a special package for you. This will save time (by eliminating the copying of information which you do not need) as well as money. Please contact the IFOPA Office at together@ifopa.org for assistance in designing the best package to fit your individual needs.

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Miscellaneous

What is FOP? A Guidebook for Families: A comprehensive look at FOP, answering many questions commonly asked of families and medical professionals. The Guidebook contains scientific articles by Dr. Fred Kaplan and others regarding research and treatment options. There are also articles by parents of afflicted children and adults with FOP offering insights into the condition. Cost $10.00

What is FOP? Questions and Answers for the Children: A separate guidebook written for an audience of children ages 8-12, explaining FOP in easy-to-follow language. Cost $5.00

FOP Coloring Book: Geared for ages 4-10, it can help young children understand about the disease and share the story with siblings, friends, classmates, and teachers. It was written by Nancy Sando and illustrated by Andy Sando. Available to FOP families at no charge. Just Whip It! A recipe booklet compiled by Nancy Sando for people with limited jaw movement. Cost $4.00

A Prayer for Whitney: CD, sung by Kassy Ciasulli & Salvatore Arpino. Cost $12.00

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MUSIC

"A prayer for Whitney," is a beautiful song sung by Kassy Ciasulli and Salvatore Arpino. The magical words and music were written by Carol Bayer Sager and David Foster. Kassy used to babysit for Whitney Weldon, a girl with FOP. Her goal now "is to help get her the medical support needed to insure her dreams come true." A CD of the song, generously produced by Kevin Ferd, is available through the Betty Anne Laue/IFOPA Resource Center with a donation of $10 or more, plus $2 shipping and handling. The CD makes a wonderful favor or gift at a luncheon fundraiser, etc. To order the CD or for more information email the IFOPA office at together@ifopa.org.

VIDEOS

Please note that video tape requests must be paid in advance and will be made available only to FOP families unless prior approval has been obtained.

The Battle Against FOP, Whitney Weldon's Story - A documentary on FOP member Whitney Weldon, by Sean Devaney (40 min.) May 2003 Cost $10.00

In Search of a Cure and The Skeleton Key - "In Search of a Cure," our very own informational production, combines interviews with Drs. Kaplan, Shore and Zasloff with interviews filmed at the 3rd Symposium of members from around the world. This is the first informational video completely produced and owned by the IFOPA. As such, it can be used for fundraising purposes, as well as for education and publicity. It is moving, informative, persuasive and professional. It can be given to doctors, teachers, family members, press people and shown at fundraisers, dinners, Girl Scout meetings, anywhere you are trying to improve FOP awareness. 20 min. (2001) "The Skeleton Key" is a 50-minute episode of the BBC's Horizon show which aired March 25, 1999. (COPYRIGHT 1999 BBC HORIZON, ALL RIGHTS RESERVED). Both on one DVD - Cost $10.00

Vida 2000 - This is a 20 minute video about FOP featuring five FOP members. They tell when they noticed their first symptoms and how they were diagnosed. Gene therapy and its importance is discussed. This video is in Spanish. It is available in PAL format and VHS format. Cost $10.00

Les Gens Os et le Squelette Clé - Un enregistre comprenant deux les spectacles. Les Gens Os est un 12-minute segment L'ALPHABET s 20/20, lesquels aérer avril 2 1999. Le Squelette est un 50-minute Clé l'épisode de la BBC s Horizon remontre qui aérer Mar. 25 1999. LE USAGE PERSONNEL POUR QUE. DE LE COPYRIGHT 1999 ALPHABETS 20/20, TOUS DROITS RÉSERVÉS. DE LE COPYRIGHT 1999 BBC HORIZON TOUS DROITS RÉSERVÉS. Coûtes $10.00 !

Le Genti e l'Ossatura Chiave Ossa - L'uno fettuccia contenente due gli sfoggi. Le Genti Ossa è una 12-minute uno spicchio L'ALFABETO s 20/20, che ventilare aprile 2 1999. L'Ossatura è una 50-minute Chiave un episodio of il BBC s un Orizzonte indica che ventilare Marzo 25 1999. PER LA UTENZA PERSONALE SOLO. DIRITTI DI AUTORE IL 1999 ALFABETO 20/20, TUTTI DIRITTI RISERVATI. DIRITTI DI AUTORE 1999 BBC UN ORIZZONTE TUTTI DIRITTI RISERVATI. Costi $10.00!

The Clock is Ticking - A moving look at the Snow Family's daily life, privately produced, summer 1998 (21 min.) Cost $5.00

A Fighting Chance - A five-part award-winning news series on Stephanie Snow, with highlights from the 1994 FOP Disney trip. From KSBY, Santa Maria, CA. Cost $10.00

Prime Time - A highly insightful segment on FOP at the FOP Symposium in Philadelphia, Sept. 1991, recorded by local Philadelphia show (10 min.) Cost $10.00

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