Other FOP Websites

Here are some FOP websites created for organizations, fundraisers and by independent members. Check them out!

International organization websites:

A.E.F.O.P. (Asociación Española de Fibrodisplasia Osificante Progresiva), an FOP organization based in Spain, has a website at www.aefop.org.

Fundación FOP, in Argentina, has a website at www.fundacionfop.org.ar.

The FOP organization in Germany has a website at www.fop-ev.de.

The FOP Brazil organization has created a website at www.fopbrasil.com.br.

The Scandinavian FOP organization's website can be found at www.fopsverige.se.

The Dutch FOP organization's website can be found at www.fopstichting.nl.

Myodo Kyozen founded the FOP organization "FOP Step Jump," an organization where families to exchange the information and ideas of FOPer's everyday life. He also created a website in Japanese called "Kyozen Information Center" in which he gives information about FOP, Volunteer Centers, Japanese Gardens, Zen, No-mask, etc. View it at http://homepage2.nifty.com/kyozenm3/

Yuko Toguchi created a website in Japanese called "J-FOP," where she organizes a petition asking the Japanese government for recognition and support of FOP and makes efforts to raise funds for FOP research. View it at: http://www17.ocn.ne.jp/~j-fop/

On March 5, 2006, the new association FOPITALIA was created, with the contribution and support of some families of patients affected by FOP. You can find further information about the aims of this association at the following web site: www.fopitalia.it

Family and personal websites:

The Weldon Family has established the Weldon FOP Research Fund at the University of Pennsylvania in honor of their daughter, Whitney. Learn about this New Jersey's family efforts in funding research in the genetic area of FOP, fundraising events, and political updates by visiting their website at www.weldonfop.org

Hayden's Hope was developed in honor of Hayden Pheif, a young boy with FOP. Donations to the IFOPA can be made through Hayden's website at www.haydenshope.com. The website has information about Hayden and the IFOPA. The Annual Hayden's Hope Fundraiser is held every year in the fall.

Tomasz Przybysz created an FOP website in Polish. Go to www.fop.prv.pl to check it out.

Ivan Garcia created a website about FOP in Spanish.
www.geocities.com/alafop/principal.htm.

Akihiro Shino created a website in Japanese called "Touch Medusa!" which contains a diary and shows his life with FOP with lots of pictures in his website. View it at: http://plaza.rakuten.co.jp/sino2005/

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