Guidebook Home

Table of Contents

Preface

Introductory Comments

General Questions About FOP

Genetics of FOP

How FOP Affects the Body

Care and Treatment

Activities

Feelings About FOP

Helpful Addresses

Family Resources

Ideas for Independence

Medical Articles

Acknowledgments and Contributions

International FOP Association, Inc (IFOPA)
P.O. Box 196217
Winter Springs, FL 32719-6217
Phone (407) 365-4194
Fax (407) 365-3213
E-mail together@ifopa.org

Frederick Kaplan, M.D.
Medical Advisor, IFOPA
Isaac and Rose Nassau Professor of Molecular Orthopaedic Medicine
University of Pennsylvania Medical Center
Department of Orthopaedics
Silverstein Two
3400 Spruce Street
Philadelphia, PA 19104
Office Phone (215) 349-8727
Lab (215) 898-8653
Fax (215)349-5928
E-mail: frederick.kaplan@uphs.upenn.edu

David Glaser, M.D.
Medical Advisor, IFOPA
Ian Cali Fund-FOP Center
Assistant Professor of Molecular Medicine
Presbyterian Medical Center
Department of Orthopaedics
39th and Market St., 1 Cupp Pavilion
Philadelphia, PA 19104
Cell (215) 510-3261
Lab (215) 898-2330
E-mail: david.glaser@uphs.upenn.edu

Eileen Shore, Ph.D.
FOP Laboratory Director and Scientific Advisor
University of Pennsylvania School of Medicine
Department of Orthopaedics
424 Stemmler Hall
36th & Hamilton Walk
Philadelphia, PA 19104
Office Phone (215) 898-2331
Lab (215) 898-8653
Fax (215) 573-2133
E-mail: shore@mail.med.upenn.edu

Burton L. Nussbaum, D.D.S.
Dental Care
Dentistry for Special People, P.A
1910 Marlton Pike E Ste 9
Cherry Hill, NJ 08003-2123
Phone: (856) 424-5955
Fax: (856) 424-8382
Email: bikr2th@aol.com
Website: www.dentistryforspecialpeople.com

Patricia Delai, M.D.
Representative of the IFOPA in Latin America
President of the Brazilian FOP Association - FOPBRASIL
Latin American FOP Medical Advisor
Rua Pedro de Toledo, 129 conjunto 121
Vila Clementino, Sao Paulo, SP 04039-030
Brazil
Office and Fax Phone: 55-11-5539-5817
Mobile: 55-11-9658-8816
Email: patriciadelai@uol.com.br
         patriciadelai@ajato.com.br
Website: www.fopbrasil.com.br

J. Michael Connor, M.D.
Professor and Chief
Institute of Medical Genetics
University of Glasgow Medical School
Glasgow G3 8SJ
Scotland
United Kingdom
Tel: 011-44-141-201-0363
E-mail: J.M.Connor@clinmed.gla.ac.uk

John G. Rogers, M.D.
Senior Medical Geneticist
Royal Children's Hospital Genetics Clinic
The Murdoch Institute-10th Floor
Flemington Road
Parkville 3052
Melbourne, Australia
Office Phone: (03) 9345 5147
Fax: (03) 9348 1391

Zvi Grunwald, M.D.
Anesthesiologist
The James D. Wentzler Professor and Chairman
Department of Anesthesiology
Thomas Jefferson University Hospital
11 th & Walnut Streets
Philadelphia, PA 19107
Tel: 215-955-1147
Fax: 215-923-5507
Email: zvi.grunwald@jefferson.edu